Tag: frustration

Accessibility at Hoodoo Moab, Curio Collection by Hilton

Hoodoo Moab offers excellent accessibility lodgings with a touch of luxury - with one glaring exception, which I will get to momentarily. Conveniently located near Moab's many natural attractions, this hotel makes for an enjoyable and relaxing vacay for travelers with accessibility requirements, travelers like us. My husband and I, along with our caregiver, recently … Continue reading Accessibility at Hoodoo Moab, Curio Collection by Hilton →

Bending Focus: Lessons from a Rare Disease

Support Claire Facing adversity is the acid test of our character. At no time in my life has this been more true than when confronted with the impact of a rare disease called facioscapulohumeral muscular dystrophy (FSHD or FSH). As muscle groups from the face to the feet atrophy, affecting my ability to walk, lift, … Continue reading Bending Focus: Lessons from a Rare Disease →

How to Successfully Engage with People with Disabilities

Support Claire A woman on a mobility scooter, her husband on a bike, and their caregiver in a transport vehicle roll into a parking lot of the Grand Canyon when a stranger approaches them and says, "I'm disabled, but you're more disabled than I am. Good for you for seeing the park." (No joke.) The … Continue reading How to Successfully Engage with People with Disabilities →

Let’s Talk About Caregiving (and Muscular Dystrophy)

Support Claire The quality of mercy is not strain'd. It droppeth as the gentle rain from heaven Upon the place beneath. It is twice blest: It blesseth him that gives, and him that takes. Shakespeare Whether you are a caregiver or in need of one, navigating the art of caregiving can be tricky. This article … Continue reading Let’s Talk About Caregiving (and Muscular Dystrophy) →

Where are the ADA automatic front door openers at Regal Cinemas?

Support Claire Making Accessibility Happen Here's what I e-mailed the corporate headquarters of Regal Cinemas (a recently acquired subsidiary of the Cineworld Group), and why I say that their motto “The Best Place to Watch a Movie!” only applies if you can get in the door. Copy sent to: Regal Entertainment Group; Regal Oregon, Washington, Idaho … Continue reading Where are the ADA automatic front door openers at Regal Cinemas? →

Confessions of a Caregiver, Vol. 2, The One Constant

Support Claire Hard goodbyes Claire and I returned to New Zealand at the beginning of 2014 to wrap things up. During our two-month stay, we finished selling our holdings, a process that entailed donating bag after bag of accumulated stuff, gifting books and equipment, all the necessary steps in letting go of living a decade … Continue reading Confessions of a Caregiver, Vol. 2, The One Constant →