Confessions of a Caregiver, Vol. 1, First Comes Love

So, let’s start with who I am, and about Claire and myself. I’m Lou, Claire’s husband and life partner, AKA Mr. Turner, Mr. Tucker and Mr. Flip-it (the colorful caregiver monikers to be clarified at a later time). I am 75-years young with Claire being 53-years young. (That’s right, we’re the exact same ages as … Continue reading Confessions of a Caregiver, Vol. 1, First Comes Love

Palm Springs Visitors Center

You can tell a lot about a city by the way it greets visitors with disabilities. Palm Springs does a good job in this regard at its Visitors Information Center North. Even though you may have sorted your desert paradise accessible vacation online, it’s still worth a twirl to this iconic building (if only for … Continue reading Palm Springs Visitors Center

Astoria River Trail

Making Accessibility Happen Every city wants your business. Let them know what you need and want in order to make that business happen. Here's what I sent to: City of Astoria - Mayor and City Council To the City of Astoria: The Astoria River Trail is a gem. A bit bumpy in places, but definitely … Continue reading Astoria River Trail

And then the unimaginable happened

I just didn’t see it coming. I knew since I was 18 that I had FSH muscular dystrophy. But I figured I was one of the lucky ones, able to walk and lift and smile with little difficulty. The thought of ever needing a wheelchair - pssh! - never crossed my mind. At 53, I’ve … Continue reading And then the unimaginable happened

Rolling Right Along in Accessible Scottsdale

Making Accessibility Happen Every city wants your business. Let them know what you need and want in order to make that business happen. Here's what I sent to: City of Scottsdale - Mayor and City Council Scottsdale City Hall, 3939 N Drinkwater Blvd, Scottsdale, AZ 85251 City of Scottsdale, Clean and scenic, indeed! And accessible. … Continue reading Rolling Right Along in Accessible Scottsdale

Lovely, Accessible Sunnylands

Making Accessibility Happen Accessible travel for the disabled is becoming big business. Speak with your dollars, your vote, and your voice to let commerce know what's working, and what's not. Here's what I emailed to: Sunnylands 37977 Bob Hope Drive Rancho Mirage, CA 92270 Phone (760) 202 2222 Copy to: Rancho Mirage Chamber of Commerce, … Continue reading Lovely, Accessible Sunnylands

Joshua Tree National Park Plans ADA Upgrade

My husband and I were delighted and impressed by Superintendent, David Smith's response to our visitor comments regarding accessibility at Joshua Tree National Park. Check it out: Dear Ms. Szabo-Cassella, Thank you for taking the time to reach out to me about your recent experience at the park. Although I am always grateful to get … Continue reading Joshua Tree National Park Plans ADA Upgrade

Ruth Hardy Park: ADA Action Request

Greetings, City Manager of Palm Springs, David Ready, This winter marks our third time to Palm Springs as snowbirds. The warm California sun is helpful for the physical and emotional aspects of living with muscular dystrophy, a neuromuscular condition that has impacted my strength and mobility. There are several places in the valley we could’ve … Continue reading Ruth Hardy Park: ADA Action Request

Ruth Hardy Park

Of all the things there are to see and do in beautiful Palm Springs, Ruth Hardy Park is fabulous place to start spinning your mobility device wheels. When in town, my husband and I go to the park almost daily, as do a copious number of dedicated dog walkers (more on that social phenomena in a moment). … Continue reading Ruth Hardy Park

Seeing the Grand Canyon by Scooter

Making Accessibility Happen Every national park has a visitor comment form that you can pick up at the guard station or sometimes e-mail online.  Sharing your experiences - positive or negative - makes a difference. Here's what I sent to: Superintendent, Chris Lehnertz P.O. Box 129 Grand Canyon, AZ 86023 My sincere thanks for making … Continue reading Seeing the Grand Canyon by Scooter

Going Places

Actively engaging with the world is essential for body and soul. Mine anyway. As someone living with FSH muscular dystrophy, getting out of the house, out of my head and into the world is as life-sustaining as breathing good, fresh air. Here's the rub: Mother Nature is a wonderful healer and teacher, but accessibility to … Continue reading Going Places

Joshua Tree National Park

Making Accessibility Happen Every national park has a visitor comment form that you can pick up at the guard station or e-mail online.  Sharing your experiences - positive or negative - makes a difference. Here's what I sent to jotr_info@nps.gov Greetings, Superintendent of beautiful Joshua Tree National Park, Suggestions: As someone living with muscular dystrophy, … Continue reading Joshua Tree National Park