Tag: advocacy

Accessibility at Hoodoo Moab, Curio Collection by Hilton

Hoodoo Moab offers excellent accessibility lodgings with a touch of luxury - with one glaring exception, which I will get to momentarily. Conveniently located near Moab's many natural attractions, this hotel makes for an enjoyable and relaxing vacay for travelers with accessibility requirements, travelers like us. My husband and I, along with our caregiver, recently … Continue reading Accessibility at Hoodoo Moab, Curio Collection by Hilton →

Bending Focus: Lessons from a Rare Disease

Support Claire Facing adversity is the acid test of our character. At no time in my life has this been more true than when confronted with the impact of a rare disease called facioscapulohumeral muscular dystrophy (FSHD or FSH). As muscle groups from the face to the feet atrophy, affecting my ability to walk, lift, … Continue reading Bending Focus: Lessons from a Rare Disease →