Bending Focus: Lessons from a Rare Disease

Facing adversity is the acid test of our character. At no time in my life has this been more true than when confronted with the impact of a rare disease called facioscapulohumeral muscular dystrophy (FSHD or FSH). As muscle groups from the face to the feet atrophy, affecting my ability to walk, lift, and speak, … Continue reading Bending Focus: Lessons from a Rare Disease

How to Successfully Engage with People with Disabilities

A woman on a mobility scooter, her husband on a bike, and their caregiver in a transport vehicle roll into a parking lot of the Grand Canyon when a stranger approaches them and says, "I'm disabled, but you're more disabled than I am. Good for you for seeing the park." (No joke.) The woman on … Continue reading How to Successfully Engage with People with Disabilities

Let’s Talk About Caregiving (and Muscular Dystrophy)

The quality of mercy is not strain'd.It droppeth as the gentle rain from heavenUpon the place beneath. It is twice blest:It blesseth him that gives, and him that takes.Shakespeare Whether you are a caregiver or in need of one, navigating the art of caregiving can be tricky. This article offers insights and information to make … Continue reading Let’s Talk About Caregiving (and Muscular Dystrophy)

Scootering Sedona’s Red Rock Scenic Byway (Arizona SR 179)

This is a spin for the bucket list! With breathtaking vistas of ancient sandstone formations flanked by scented junipers spiring into bright blue Arizona sky – some of the most photographed scenery in the world – this scooter ride is spectacular! Scootering Red Rock Scenic Byway Getting There From Phoenix, take the I-17 north, exit … Continue reading Scootering Sedona’s Red Rock Scenic Byway (Arizona SR 179)

Our Favorite Spin of 2021

McDowell Mountain Road McDowell Mountain Road The longer the pandemic lingers globally, the more my husband Lou and I discover places to spin locally. In doing so in 2021, we came upon a favorite new route: McDowell Mountain Road, a super scenic, eight-mile stretch connecting Fountain Hills to Rio Verde, AZ. Mountainous southwestern landscapes teeming … Continue reading Our Favorite Spin of 2021

Spinning Scenic Needle Rock Rd – Rio Verde, AZ

  Not far from Scottsdale lies a scenic gem of the Tonto National Forest known as Needle Rock Recreation Area. Its sole byway is Needle Rock Road. Pictures don't do justice to the beautiful vistas that unfold along this 3-mile stretch, (though I will certainly post a few).   Four Peaks in the distance Lightly … Continue reading Spinning Scenic Needle Rock Rd – Rio Verde, AZ

Top Tips When Booking Accessible Travel

Traveling differently abled has never been better. ADA legislation coupled with ever growing consumer demand has greatly improved the availability of quality accessible travel in the USA and abroad. That said, as someone who travels as often as possible while managing FSH muscular dystrophy, I find that the following measures best ensure successful accessible adventures. … Continue reading Top Tips When Booking Accessible Travel

Best Scootering in the Sonoran Desert – Apache Wash Trailhead, Phoenix

Spoiler alert: This ADA accessible desert adventure will make others pale in comparison. It has for us. Since discovering Apache Wash Trailhead, my husband Lou and I go a couple of times a week. For spectacular spinning, it's simply one of the most beautiful accessible trail systems we've encountered in the Phoenix area so far. … Continue reading Best Scootering in the Sonoran Desert – Apache Wash Trailhead, Phoenix

Beyond the Casino: Top Accessible Travel in Reno-Sparks, NV

If you're looking for excellent accessible travel experiences in the Silver State beyond casinos, Reno-Sparks has some wonderful choices. Here are our top picks for where to sightsee, stay, and spin your wheels in "The Biggest Little City in the World": Where to sightseeNational Automobile Museum What I look forward to most on any vacation … Continue reading Beyond the Casino: Top Accessible Travel in Reno-Sparks, NV

Georgia O’Keeffe Museum, Santa Fe

Uplifting and informative, the Georgia O'Keeffe Museum is an accessible travel must. This collection of works by the "Mother of American modernism" exudes the empowering dynamics of a talented artist who learned the rules, and then unabashedly proceeded to reinvent them on her own terms with great commercial success - yeah, she rocked the 20th … Continue reading Georgia O’Keeffe Museum, Santa Fe

Scottsdale: Hell on Wheels

 Note: Although this post specifies my Scottsdale home base, its cautionary message applies nationwide, urging increased driver awareness of mobility device users sharing the road. Dangerously so, it happened again this morning: Scottsdale drivers came close to hitting my mobility scooter while I was transiting a crosswalk. Many of these chronic traffic violators are on … Continue reading Scottsdale: Hell on Wheels

Top ADA Spins Along The Loop in Tucson, AZ

Blooming brittlebrush, hummingbirds tipping the tops of Palo Verde trees, the occasional equestrian, beautiful ironwork bridges, mountain vistas and accessible paved trails for any kind of mobility device...there are plenty of reasons why spinning The Loop in Tucson is addictive outdoor adventure. With a network of 120 miles of shared-use paths (soon to be 131 … Continue reading Top ADA Spins Along The Loop in Tucson, AZ

Regal Cinemas Bridgeport Improves Accessibility

Access advocacy works! Many thanks to everyone who contributed constructive comments regarding the need for ADA automatic front door openers at Regal Cinemas. After my original post (Where are the ADA automatic front door openers at Regal Cinemas?) and other collaborative calls for action, this critical accessibility feature was added in Fall 2018 at Regal Cinemas … Continue reading Regal Cinemas Bridgeport Improves Accessibility

Bellagio Conservatory and Botanical Garden, Las Vegas

For travelers with or without disabilities, Las Vegas is becoming less about the casinos, and more about “The Experience.” Whether you’re looking for award-winning cuisine, color beyond compare, or a blast of contemporary culture, you’ll find it in “the city that never sleeps." And with great accessibility. I’ve never seen more scooters per capita than in … Continue reading Bellagio Conservatory and Botanical Garden, Las Vegas

Accessible Bridges and Boardwalks, Portland, OR

After wintering in the desert, it was great to reacclimate to the luscious Pacific Northwest with one of our favorite ADA accessible outings, one we’ve done over a dozen times: rolling a section of the Springwater Corridor into and around downtown Portland’s riverfront. Scenic cityscapes peek through punctuated clearings of natural wetlands, making the journey … Continue reading Accessible Bridges and Boardwalks, Portland, OR

ADA Accessible Zion National Park

Of the twelve southwestern national parks encompassed within The Grand Circle, Zion is the jewel in the crown. Here are some tips to maximize accessible travel for people with disabilities. Get yourself an Access Pass (You can thank me later.) The national parks issue an Access Pass for US citizens with permanent disabilities. You can apply … Continue reading ADA Accessible Zion National Park

Heard Museum, Phoenix

A friend told us about Phoenix’s Heard Museum over dinner. Intrigued, my husband and I went the very next morning, and were so glad we did. She was right: The museum’s collection of traditional and contemporary American Indian art (mostly southwestern) is simply superb. Each exhibit oozes quality over quantity. Great accessibility From the perspective … Continue reading Heard Museum, Phoenix

Accessible Travel: Lithia Springs Resort, Ashland, OR

As frequent travelers to Ashland‘s Oregon Shakespeare Festival, my husband and I have stayed all over the city. By far, Lithia Springs Resort is our favorite accommodation for several reasons, starting with accessibility. I always aim to book early to get the ADA compliant room we most prefer, which is the patio bungalow (#19) located … Continue reading Accessible Travel: Lithia Springs Resort, Ashland, OR

Confessions of a Caregiver, Vol. 2, The One Constant

Hard goodbyes Claire and I returned to New Zealand at the beginning of 2014 to wrap things up. During our two-month stay, we finished selling our holdings, a process that entailed donating bag after bag of accumulated stuff, gifting books and equipment, all the necessary steps in letting go of living a decade Down Under. … Continue reading Confessions of a Caregiver, Vol. 2, The One Constant

Accessible Natural Marvels at Kartchner Caverns in Benson, AZ

The glorious wonders of Kartchner Caverns are accessible to everyone, including people who mobilize with a wheelchair, scooter or cane. People like me. I charged up my red power chair for spelunking into the unassuming Whetstone Mountains, and with the superb set up provided by the Arizona State Parks system navigated the depths of one … Continue reading Accessible Natural Marvels at Kartchner Caverns in Benson, AZ