The Inward Journey

Rolling along on my red mobility scooter gives me time to listen to my heart. My thoughts on nature, the human condition, matters of life and death, and living with muscular dystrophy color a whole gamut of reflections.

Thanks for joining me as I travel within.

The Backstory: Growing Up with Muscular Dystrophy

And then the unimaginable happened

Almost Dying for a Cure

Where do we go from here?

“Scooter Person” Jane Fonda

Queen for a Day (with Muscular Dystrophy)

The 10 Best Ways I Keep Anxiety at Bay

How a Musical is Changing Perceptions About Disabilities, Including Mine

Managing Muscular Dystrophy with Technology

Let’s Talk About Caregiving (and Muscular Dystrophy)

How to Successfully Engage with People with Disabilities

Bending Focus: Lessons from a Rare Disease

Get Thee to a Dispensary: Managing Muscular Dystrophy with Medical Marijuana

Video Shorts: Aqua Therapy for Muscular Dystrophy

The Making of Red Scooter Diaries, the Documentary: An Interview with The FSHD Advocate

Confessions of a Caregiver

My husband Lou Cassella has a few stories to share from the perspective of a full-time caregiver.

Confessions of a Caregiver, Vol. 1, First Comes Love

Confessions of a Caregiver, Vol. 2, The One Constant

Confessions of a Caregiver, Vol. 3, When Opportunity Knocks

Confessions of a Caregiver, Vol. 4, Adventures in Healing