Blog

Video Shorts: Aqua Therapy for Muscular Dystrophy

Aqua Therapy with Aquaman and Friends As is the case with many folks with compromised mobility, the pool is a happy, healing place for me. Below you will find a series of video YouTube shorts highlighting key exercises that my husband (a.k.a. Aquaman) and I do in our neighborhood pool three or four times a … Continue reading Video Shorts: Aqua Therapy for Muscular Dystrophy

Get Thee to a Dispensary: Managing Muscular Dystrophy with Medical Marijuana

Managing the physical and emotional strains of a chronic condition can be challenging, sometimes in the extreme. Anything that alleviates tension and pain while improving functionality is a welcomed godsend bordering on the miraculous. I speak from experience. As someone living with advanced facioscapulohumeral dystrophy (FSHD), I have tried everything to retard and improve my … Continue reading Get Thee to a Dispensary: Managing Muscular Dystrophy with Medical Marijuana

Bending Focus: Lessons from a Rare Disease

Facing adversity is the acid test of our character. At no time in my life has this been more true than when confronted with the impact of a rare disease called facioscapulohumeral muscular dystrophy (FSHD or FSH). As muscle groups from the face to the feet atrophy, affecting my ability to walk, lift, and speak, … Continue reading Bending Focus: Lessons from a Rare Disease

How to Successfully Engage with People with Disabilities

A woman on a mobility scooter, her husband on a bike, and their caregiver in a transport vehicle roll into a parking lot of the Grand Canyon when a stranger approaches them and says, "I'm disabled, but you're more disabled than I am. Good for you for seeing the park." (No joke.) The woman on … Continue reading How to Successfully Engage with People with Disabilities

Let’s Talk About Caregiving (and Muscular Dystrophy)

The quality of mercy is not strain'd.It droppeth as the gentle rain from heavenUpon the place beneath. It is twice blest:It blesseth him that gives, and him that takes.Shakespeare Whether you are a caregiver or in need of one, navigating the art of caregiving can be tricky. This article offers insights and information to make … Continue reading Let’s Talk About Caregiving (and Muscular Dystrophy)

Scootering Sedona’s Red Rock Scenic Byway (Arizona SR 179)

This is a spin for the bucket list! With breathtaking vistas of ancient sandstone formations flanked by scented junipers spiring into bright blue Arizona sky – some of the most photographed scenery in the world – this scooter ride is spectacular! Scootering Red Rock Scenic Byway Getting There From Phoenix, take the I-17 north, exit … Continue reading Scootering Sedona’s Red Rock Scenic Byway (Arizona SR 179)

Our Favorite Spin of 2021

McDowell Mountain Road McDowell Mountain Road The longer the pandemic lingers globally, the more my husband Lou and I discover places to spin locally. In doing so in 2021, we came upon a favorite new route: McDowell Mountain Road, a super scenic, eight-mile stretch connecting Fountain Hills to Rio Verde, AZ. Mountainous southwestern landscapes teeming … Continue reading Our Favorite Spin of 2021

Managing Muscular Dystrophy with Technology

…The new dawn blooms as we free itFor there is always lightIf only we’re brave enough to see itIf only we’re brave enough to be it --Amanda Gorman, US Youth Poet Laureate All the signs were there: a weakening grip, shaky fingers, gnarling knuckles, random palsy…After five years of limited arm and leg functionality, meaning … Continue reading Managing Muscular Dystrophy with Technology

Spinning Scenic Needle Rock Rd – Rio Verde, AZ

  Not far from Scottsdale lies a scenic gem of the Tonto National Forest known as Needle Rock Recreation Area. Its sole byway is Needle Rock Road. Pictures don't do justice to the beautiful vistas that unfold along this 3-mile stretch, (though I will certainly post a few).   Four Peaks in the distance Lightly … Continue reading Spinning Scenic Needle Rock Rd – Rio Verde, AZ

Top Tips When Booking Accessible Travel

Traveling differently abled has never been better. ADA legislation coupled with ever growing consumer demand has greatly improved the availability of quality accessible travel in the USA and abroad. That said, as someone who travels as often as possible while managing FSH muscular dystrophy, I find that the following measures best ensure successful accessible adventures. … Continue reading Top Tips When Booking Accessible Travel

Scootering New River Trail, Peoria, AZ

Given beautiful weather, my husband and I often head to Peoria's New River Trail for some scenic urban spinning. This popular trail system has it all, including easy accessibility for mobility devices. Getting thereHandicap parking and ADA restrooms are readily available at Rio Vista Community Park (8866 W. Thunderbird Road, Peoria). This park is the … Continue reading Scootering New River Trail, Peoria, AZ

Best Scootering in the Sonoran Desert – Apache Wash Trailhead, Phoenix

Spoiler alert: This ADA accessible desert adventure will make others pale in comparison. It has for us. Since discovering Apache Wash Trailhead, my husband Lou and I go a couple of times a week. For spectacular spinning, it's simply one of the most beautiful accessible trail systems we've encountered in the Phoenix area so far. … Continue reading Best Scootering in the Sonoran Desert – Apache Wash Trailhead, Phoenix

Beyond the Casino: Top Accessible Travel in Reno-Sparks, NV

If you're looking for excellent accessible travel experiences in the Silver State beyond casinos, Reno-Sparks has some wonderful choices. Here are our top picks for where to sightsee, stay, and spin your wheels in "The Biggest Little City in the World": Where to sightseeNational Automobile Museum What I look forward to most on any vacation … Continue reading Beyond the Casino: Top Accessible Travel in Reno-Sparks, NV

Where to Play and Stay in Accessible Santa Fe

Santa Fe, the country's oldest state capital, is chock full of accessible adventure. Whether you're going for the art, a fabulous meal, incredible (window) shopping, or an outdoor spin, this picturesque city delivers in spades. Maximize your experience by knowing the best places to play and stay for accessibility. Here are our top picks: Where … Continue reading Where to Play and Stay in Accessible Santa Fe

Georgia O’Keeffe Museum, Santa Fe

Uplifting and informative, the Georgia O'Keeffe Museum is an accessible travel must. This collection of works by the "Mother of American modernism" exudes the empowering dynamics of a talented artist who learned the rules, and then unabashedly proceeded to reinvent them on her own terms with great commercial success - yeah, she rocked the 20th … Continue reading Georgia O’Keeffe Museum, Santa Fe

How a Musical is Changing Perceptions About Disabilities, Including Mine

Caregivers wheeled Luke Hogan Laurenson and me into the Oregon Shakespeare Festival's Angus Bowmer Theater: me with muscular dystrophy to my seat; him with cerebral palsy onto the stage for his role in Hairspray. By the musical's finale - an uptempo collective promise for social progress - we would both be assisted onto our feet, … Continue reading How a Musical is Changing Perceptions About Disabilities, Including Mine

Accessibility at the Utah Shakespeare Festival

In July 2019, I attended four Utah Shakespeare Festival performances in three different theaters, all via motorized powerchair. Uber-talented actors, gorgeous costumes, and state-of-the-art set design made it clear that "the play's the thing" at this Cedar City based event. Each production was simply jaw dropping fantastic, most notably Twelfth Night. The ADA accessibility and … Continue reading Accessibility at the Utah Shakespeare Festival

Scottsdale: Hell on Wheels

 Note: Although this post specifies my Scottsdale home base, its cautionary message applies nationwide, urging increased driver awareness of mobility device users sharing the road. Dangerously so, it happened again this morning: Scottsdale drivers came close to hitting my mobility scooter while I was transiting a crosswalk. Many of these chronic traffic violators are on … Continue reading Scottsdale: Hell on Wheels

10 Top Tips for Buying a Mobility Scooter

Mobility is nobility in any form it takes, including riding a mobility scooter. Whether I'm cruising around the block for some fresh air or scootering the biking trails of a national park, I'm happy to be moving on my own accord. Pride PursuitTo that end, my candy apple red Pride Pursuit mobility scooter is one … Continue reading 10 Top Tips for Buying a Mobility Scooter

Top ADA Spins Along The Loop in Tucson, AZ

Blooming brittlebrush, hummingbirds tipping the tops of Palo Verde trees, the occasional equestrian, beautiful ironwork bridges, mountain vistas and accessible paved trails for any kind of mobility device...there are plenty of reasons why spinning The Loop in Tucson is addictive outdoor adventure. With a network of 120 miles of shared-use paths (soon to be 131 … Continue reading Top ADA Spins Along The Loop in Tucson, AZ